zenolalia | (no subject)

The nurse today gave me a nasty look, but at least not a lecture, when I admitted I don't exercise because I'm too tired. I sleep 12-14 hours a day and gave nonstop headaches. When and where would I find the energy? To say nothing of my actual, literal fucked knee and the fact that moderate heart rate increases and parasympathetic nervous activation cause me to have panic attacks, hallucinations, flashbacks, migraines, and what may or may not be absence seizures.

The neurologists decided I have sleep apnea because in overweight. I don't snore, wake myself up, have breathing difficulties, dry mouth, breathlessness, stop breathing, gasp, have high blood pressure, have a large neck girth, have family history of apnea, or sleep on my back. But I'm fat and tired. So it's apnea.

I'm so tired of doctors.

Even with a good primary care doctor, the fact is, she's almost an hour drive away, and my specialists are so such a crap shot, and I'm just so tired.

I'm so tired and I can't ever sleep enough

Flat | Top-Level Comments Only

I don't snore, wake myself up, have breathing difficulties, dry mouth, breathlessness, stop breathing, gasp, have high blood pressure, have a large neck girth, have family history of apnea, or sleep on my back. But I'm fat and tired. So it's apnea.

*incoherent muffled yelling and hand-waving* Forget fat people, that doctoring is what's really lazy.

The thing that gets me is, my PCP put me down for a full sleep study, like the in-lab with the electrodes and what have you. And this neuro who has legitimately never met me, for whom I had never even done a single intake questionnaire?

He saw my weight on my referral and CHANGED me to a sleep apnea test confirmation exam.

Had he met me, asked a single question, given me a single form, I would have explained in great detail all the reasons why while I would love for it to be sleep apnea--one of the easier to disagnose and better understood sleep disorders that, critically, is widely covered by insurance--that's almost impossible in my case!

But he did not ask!

He just!!! Decided!!!!

So now I get to wait for this confirmation exam to come back negative (which it undoubtedly will), and then I get to wait a few MORE months for him and his over-booked schedule to have a SECOND opening to see me, and THEN I will get to explain and THEN I will get the lab that my PCP put in me for in the first goddamn place.

Like, I'm honestly furious about this, or I would be if I had the energy, but mostly I'm just tired.

That is some second class citizenship bullshit right there.