Just a miniature medical update
For those following this saga of stupidity, I saw my GP. She got the notes from the specialist who did in fact try to tell her that it was sleep apnea, but fortunately, my decision to contact the records department myself and get a copy of the lab test forwarded meant that my GP was able to see the lab and conclude that no it fucking isn't, based on A) the fact that the lab showed no signs of it being apnea and B) the lab tech who pulled the results over the machine ALSO saying on the lab paperwork itself that it isn't apnea, which is a FUN fucking detail that specialist neglected to mention. I also got my own copy of the lab, including the tech's comments.
I'm going forward with narcolepsy testing as soon as insurance comes through (so not any time soon) and until then have gone ahead and proactively begun making the relevant lifestyle changes in as much as is possible. There's limits to what can be achieved without medication, in terms of hours-a-day, but hopefully I can get better quality from the hours that I do have awake.
My sister, who does a lot of liaison type work between abused kids and hospitals, and thus has experience with this stuff, is going to help me file a complaint about this specialist with the licensing board she works under. I was willing to let it slide, honestly, until the fucking part where she tried to sabotage me with my GP.
Basically, it's all been shit, and it's probably all going to keep being shit, but at least it's like... more controlled shit now?
I don't know. At least I have a working concept of what to do going forward.
I'm going forward with narcolepsy testing as soon as insurance comes through (so not any time soon) and until then have gone ahead and proactively begun making the relevant lifestyle changes in as much as is possible. There's limits to what can be achieved without medication, in terms of hours-a-day, but hopefully I can get better quality from the hours that I do have awake.
My sister, who does a lot of liaison type work between abused kids and hospitals, and thus has experience with this stuff, is going to help me file a complaint about this specialist with the licensing board she works under. I was willing to let it slide, honestly, until the fucking part where she tried to sabotage me with my GP.
Basically, it's all been shit, and it's probably all going to keep being shit, but at least it's like... more controlled shit now?
I don't know. At least I have a working concept of what to do going forward.
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Hands you a metaphorical plumber's snake to help you deal with all that sh*t.
Also, hoo and ray for your sister!